N=1 Collaborative Project Manager Remote · Full time

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The N=1 Collaborative is a nonprofit whose mission is to transform the treatment of rare genetic disease by building a scalable and responsible pathway for individualized medicines. We are a team of clinicians, scientists, regulators, patient advocates from across academia, government, foundations, and biotech/pharma committed to openly sharing and iterating our work with the broader community in order to make individualized medicines routine worldwide. Learn more about our work at https://www.n1collaborative.org/

About the N1C

Rare diseases are individually rare, but collectively common — hundreds of millions are impacted globally across ~10,000 diseases. Many affect children, most have no treatments, and the commercial drug development opportunities are limited. 

The dawn of new genetic medicines has made possible the development of drugs tailored to a single patient. Scaling this pathway safely and sustainably requires building a new paradigm and best practices in a collaborative, open, and thoughtful manner. The N=1 Collaborative (N1C) is a non-profit organization of clinicians, scientists, regulators, patient advocates from across academia, government, foundations, and biotech/pharma committed to openly sharing and iterating our work with the broader community in order to make individualized medicines routine worldwide.

About the role

We are looking to hire a full-time Project Manager to be the driving force behind key projects — working closely both with workgroups to achieve goals within deadlines and budgets, as well as N1C leadership in prioritization and goal setting. The ultimate responsibility of this role is to help ensure we are building the foundations of individualized medicines with the rigor, responsibility, and urgency that patients with ultra rare disease need. 

We are looking for someone who:

• Is passionate about transforming rare disease treatment
• Is supremely organized, self-motivated
• Is an excellent communicator
• Can balance big-picture strategy with the executional details
• Has experience working in academic or nonprofit settings (not essential)
• Is willing to problem solve and learn new areas quickly with a bias to action

Your day to day may include:

• Leading project meetings with clinicians, scientists, regulators, and other domain experts
• Working closely with N1C leadership in strategic goal setting and prioritization
• Managing project dashboards, budgets, milestones and timelines
• Communicating progress to other teams and N1C leadership via slides, reports, and presentations
• Researching diverse concepts of individualized medicines, from patient selection to ethics to clinical outcomes 
• Harnessing the expertise of diverse resources experts to trainees (e.g., MD and PhD students, clinical residents & fellows) and beyond

We think an ideal individual in this role has:

• 2-5 years experience managing projects, administering grants, consulting, or related work
• Worked previously with academics or in non-profit settings
• Comfort working remotely and self-managing
• Bachelor’s degree required; advanced degrees (Masters, PhD) not needed
• Background in science, medicine, or related fields 

Reasons you may like this role:

• You will play a central role in a global effort to transform the way we treat disease
• You will be inspired consistently by the ultra-rare disease patients and their families, as well as the teams that care for them 
• You will work with top experts and learn about the scientific, clinical, regulatory, and drug development pathways of individualized medicines. 
• You will be a part of a small, passionate, and committed team who are driven by the same mission and vision for the future

Reasons you may not like this role:

• We are a startup: we may not have the resources or structure of larger organizations, and work is fast-paced and dynamic
• We are a nonprofit: many experts are volunteers, and harnessing their timely contributions requires equal parts EQ as well as IQ
• You will likely have to wear multiple hats as we build the organization
• There is a lot of autonomy with managing yourself and problem solving. 
• There is no playbook for the work we are doing; we are building it.